Board of Directors
JOEL J. AFRICK, JD - TREASURER
Joel Africk is President and Chief Executive Officer of Respiratory Health Association, located in Chicago, Illinois. Joel is a principal advocate for the Association’s programs and policy agenda. Some of the Association’s notable policy achievements include working for passage of smoke-free laws in Chicago, the surrounding suburbs, and Illinois; advocating on behalf of smoke-free multi-unit housing in Chicago and other Illinois communities, and securing passage of important asthma inhaler “right to carry” legislation in Illinois.. Joel is a frequent speaker on lung health topics, including tobacco control, COPD and asthma. In 2010, Joel was appointed to the State of Illinois Chronic Disease Prevention and Health Promotion Task Force. In 2012, he was elected to the board of directors of the US COPD Coalition. Prior to assuming his current position, Joel was a partner in the Chicago law firm of Jenner & Block, LLP, where he represented clients in a broad range of business litigation matters from 1984-2001. Joel is a cum laude graduate of Harvard Law School and a magna cum laude graduate of the University of Illinois at Urbana Champaign, where he received an A.B. in Political Science and passed the Uniform CPA examination.
KENNETH BENSON - SECRETARY
Kenneth (Ken) Benson has been an advocate for awareness and access to healthcare for respiratory patients with COPD since being diagnosed with adult asthma, severe emphysema and alpha-1 Antitrypsin deficiency (the leading genetic cause of COPD) in 1987.
He holds a Bachelor of Science degree from Central Michigan University.
He has served on the board of the Alpha-1 association where he was also the board chair and currently serves on the board of the US COPD Coalition. His most recent projects include serving as a consumer reviewer for congressionally directed medical research programs as well as serving on the Pulmonary and Critical standing committee of the National Quality Forum.
Mr. Benson resides in Laguna Woods, California.
His interest in being a part of the United States COPD Coalition stems directly from being a COPD patient and my related work with other patients over the past 20 years working to improve the quality of life for those affecting with respiratory issues.
He as served as a support group leader, member of the board of directors of COPD related organizations, lobbied congress for laws that would benefit the patient, volunteered for research studies, and have worked as a member of action committees with many other respiratory groups.
VALERIE CHANG, JD - VICE CHAIRWOMAN
Valerie Chang is a retired judge and patient advocate, Executive Director and Founder of the Hawaii COPD Coalition, founded in 2007. She was diagnosed with idiopathic COPD in 2000. Some of the notable accomplishments of the Hawaii COPD Coalition are strong partnerships throughout the state, including the Hawaii Department of Health Tobacco Prevention and Education Program and others. Annual education days have been held since 2007 as well as monthly support groups, currently at two of the major medical centers. The Coalition has also been active in advocacy, providing the “face” for COPD, helping getting clean air legislation in Hawaii passed, as well as licensure for Hawaii Respiratory Therapists and requiring durable medical equipment providers to be licensed in Hawaii if they are doing business in Hawaii.
Valerie has spoken on local and national venues about COPD and lung health advocacy. She has been on the Board of the US COPD Coalition since 2012 and a consumer advocate of the Congressionally Directed Medical Research Programs since 2014. She was a special education hearing officer and an attorney in private practice, as well as a graduate of University of California at Davis Law School. She has a bachelor of arts with honors in Sociology from University of Oregon. She is licensed to practice law in both California and Hawaii.
Karen is 70, retired, and lives in Florida with her husband, Bill. She has two children and 3 grandchildren. A former heavy smoker, she was officially diagnosed with COPD in 2001 but continued working for another 7 years before retiring, partially due to her COPD.
Since retirement she has become involved with many organizations which emphasize education and support for the community of COPD patients and caregivers along with advocacy and awareness of COPD as a major health issue.
She is a State Advocacy Captain for the COPD Foundation; is a member of the Governing Board of the COPD PPRN (Patient Powered Research Network); participated in the 1st Annual State of Florida COPD Summit; and in various COPD/Alpha-1 Community Workshops throughout Florida; in National COPD Conferences; in Lobby Days at both State and Federal levels; and was the patient “face” for the DRIVE4COPD Campaign. She is on the advisory team for a new initiative, “Breathe Strong Florida”, and was a patient participant at the NIH’s COPD Town Hall Meeting to help formulate a National COPD Action Plan. She serves on local American Lung Association committees, has spoken to student RT’s, to ALA interns, was a speaker for the 2014 and 2015 ALA LungForce Expos in Orlando, and is an active member of several on-line email and Facebook support groups.
She also volunteers in her retirement community, enjoys spending time with family, reading, and going to the beach.
SAM GIORDANO, MBA, RRT - CHAIRMAN
Sam Giordano retired as the Executive Director and Chief Executive Officer of the American Association for Respiratory Care (AARC). He is a Registered Respiratory Therapist (RRT) and has worked as a Staff Respiratory Therapist and Director of Respiratory Services at various hospitals. Giordano has been an active member of the AARC and has served on the board of directors of the Allergy & Asthma Network/Mothers of Asthmatics, as Chairman of the National Commission on Allied Health Implementation Task Force and Commissioner for the National Commission on Allied Health, Department of Health and Human Services, Health Resources & Services Administration, member of the Executive Committee of the U.S. COPD Coalition, board member of the COPD Foundation, as well as memberships and leadership positions with many other various professional associations.
PATRICIA JELLEN, MSN, RN
Patricia Jellen, MSN, RN received her BSN from the College of New Rochelle in 1985 and her MSN from Columbia University in 1993. Pat's nursing career at the Columbia University Medical Center site of the New York Presbyterian Hospital has spanned from the bedside as a new graduate to nursing management and program development in more recent years. For the past 20 years, Pat has focused her clinical and professional efforts on the development and management of the Lung Volume Reduction program at NYPH. Currently, Pat is the hospital's administrative lead at the Pulmonary Diagnostic Lab at the hospital. Because of her clinical background and interest in COPD, she was the Administrative lead for the development and implementation of the Clinical pathway for COPD at NYPH.
Beyond the hospital Pat is an active member of the ERWG committee of the COPD Foundation; NY ALA planning committee for Lung Force in NYC; and an active member of the COPD9USA & COPD10USA planning committees. Pat has been an invited speaker at COPD9USA; NY Lung Force 2015; group leader at the NIH COPD Call to Action meeting in 2016; and COPD10 in Birmingham 2016.
DENAY KIRKPATRICK DNP, APN-BC
deNay Porter Kirkpatrick, DNP, APN-BC, is board certified nurse practitioner in adult health. She received her doctorate in nursing from the University of Alabama at Birmingham (UAB), School of Nursing. Dr. Kirkpatrick has practiced as an Adult Health Nurse Practitioner for over 25 years; the last 10 years have focused on the care of patients with COPD. Since 2014, Dr. Kirkpatrick has concentrated her efforts on improving the care of patients recently hospitalized with an AECOPD through a collaborative arrangement between UAB and the Centers for Medicare & Medicaid Services on their Bundled Payment Care Improvement Project. She currently serves as the Lead Nurse Practitioner for the UAB COPD Integrated Practice Unit, where she is responsible for leading a multi-disciplinary team whose goal is to improve the care of patients with COPD.
John is a COPD Patient diagnosed in 2005. His career was as a retail District Manager and troubleshooter and then as a Marketing Director. He left the work force in 2011. After engaging in a web-based video project and being asked to share his story at pharmaceutical conference, John decided his efforts would be well spent doing advocacy work for the COPD community.
John is a Captain for the COPD Foundation for the State of Minnesota. He also serves on the Executive Board of Directors for EFFORTS (an international support group for the COPD community). Each year, John also sits as a Patient Reviewer on Peer Review Medical Research Programs for the Department of Defense. His involvement in social media and interacting with other patients and caregivers led to a position of Research Associate with the PELICAN study at the University of Illinois in Chicago.
John has recently accepted the position of Patient Investigator for a PCORI funded study at Johns Hopkins: Comparing Effectiveness of Self-Management and Peer Support Communication programs amongst Chronic Obstructive Pulmonary Disease Patients and Family Caregivers.
AKSHAY SOOD, MD, MPH
Akshay Sood, an occupational and environmental pulmonologist, is a tenured Professor and the founding Miners Colfax Medical Center Endowed Chair at the University of New Mexico’s School of Medicine at Albuquerque, New Mexico. Dr. Sood completed his postdoctoral fellowship in Pulmonary, Critical Care, and Occupational and Environmental Medicine at Yale University, New Haven, Connecticut in 1997. He is a member of the ATS Environmental, Occupation, and Population Health Assembly and served as the first assembly Web Director (2003-2005); member of the Environmental Health Policy Committee (2013-present), assembly’s International Program Committee (2011-2014), assembly’s Planning Committee (2005-2010); and an assembly mentor for junior faculty (2014- present). Over the past 10 years, he has facilitated and chaired numerous scientific sessions at the ATS International Conference. In addition, he has served the Society’s New Mexico Chapter as a member of its Board of Directors (2007-2010), President (2009), and President-elect (2006-2008). He co-chairs the Respiratory Health Cross-Sector Council in the National Occupational Research Agenda of the National Institute for Occupational Safety and Health.
Dr. Sood’s research has focused on non-smoking host risk factors for obstructive lung diseases. He is known for his work in the field of obesity/adipokines and asthma in women. He helped define the protective role of Hispanic ethnicity and the risk related to inhalational wood smoke exposure for COPD in New Mexico. His study on the causal role of depression in asthma was judged as one of the most important respiratory research in May 2014 at the ATS International Conference. His recent study in the New England Journal of Medicine established that low FEV1 in early adulthood is important in the genesis of COPD. His recent research has focused on dust related obstructive lung diseases, particularly in miners.
Dr. Sood has a long standing interest in the health effects of environmental and occupational exposures in lung diseases. He has received funding for K-23 and P50 grants by the NHLBI, R01 grant by the AHRQ, R13 grant by the NIEHS, UL1 grant by the NCATS, Pipeline to Proposal I to III grants by PCORI and various HRSA-funded grants.
While serving on the U.S. COPD Coalition Board of Directors, Dr. Sood will work to enhance the understanding of the role of non-smoking exposures in COPD, and to strengthen the Coalition’s international linkages by emphasizing the global impact of occupational and environmental exposures in COPD.
BARBARA YAWN, MD
Barbara Yawn is a family physician and researcher with extensive experience with obstructive lung disease research and practice. She has been a member of the USCC board of directors for several years and co-chair for 4 years in the past. She represents primary care, an important group to bring into a more active role in COPD screening, evaluation and management. She also sits on the COPD Foundation Medical and Scientific Advisory Committee. This will be her last term to run for the board since she is retiring and will be looking for a replacement to carry on participation in the important work of the USCC.